The National Organization for Rare Disorders (NORD)

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Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

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Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Air Charity Network

Address:
4620 Haygood Road Suite 1
Virginia Beach, VA 23455
USA

Phone: 877-621-7177
Fax: 916-641-0600
800 Number: 800-549-9980
TDD: --
Email Address: execdir@aircharitynetwork.org

AirLifeLine is a national, non-profit organization of private pilots who donate their time, skills, aircraft, and fuel to fly medical missions. Founded in 1978, the program was initially established to provide efficient transportation of time-critical medical cargo. In 1984, the organization's services were expanded to include ambulatory patients who require life-sustaining treatments, such as surgery, chemotherapy, radiation, or medical care, at medical facilities far from home and who cannot afford the cost of travel. The program, which initially included 25 interested pilots in California, has grown to include over 900 pilots nationwide. Services are provided at no cost to patients or referring agencies. AirLifeLine provides flights for patients who fulfill certain criteria (e.g., demonstrated medical and financial needs, etc.) and for an accompanying support person or persons, such as the parents of an ill child. The organization does not limit its services to a specific age group of patients nor to specific medical diagnoses. In addition to providing flights for patients who need to travel to medical treatment centers, AirLifeLine also offers flights to help fulfill the wishes of terminally ill patients. This type of request must come from an organization, agency, or hospital that is aware of the patient's situation. To a limited degree, the program also flies time-critical cargo, such as blood or donor organs for transplants and other types of surgery. AirLifeLine receives referrals from hospital social workers, discharge planners, and voluntary organizations. In addition, patients and family members may contact the organization for assistance.

Chapters: 50
Website: http://www.aircharitynetwork.org/


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Last modified Wednesday, November 26, 2008