Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

ACT (Association for Children's Palliative Care) Accessible site by NEMISYS ACT (Association for Children's Palliative Care)
a/k/a: ACT

Address:
Brunswick Court
Brunswick Square
Bristol, BS2 8PE
United Kingdom

Phone: +44- (0-) 117 916 6422
Fax: 011-7 9-30 4707
800 Number: --
TDD: --
Email Address: info@act.org.uk

The ACT (Association for Children's Palliative Care) is a UK-based international non-profit organization dedicated to providing resources for parents and professionals caring for children with life-threatening or terminal conditions. Its mission is to facilitate the best possible care for affected children and their families by promoting models of good practice, providing information and education, and stimulating research and informed debate. Comprised of 200 members, ACT represents the needs of affected children and their families, and campaigns for the provision of a flexible network of care and support. It also provides a UK-wide information resource for children, parents, caregivers, and professionals.

Website: http://www.act.org.uk

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.

Last modified Wednesday, November 26, 2008