The NORD Resource Guide is widely used in office and institutional settings, such as libraries, medical offices, social service agencies, schools, and hospitals, where families may seek assistance in finding sources of help and encouragement. The 5th edition was published in 2005.

This 740-page reference book provides descriptions and contact information for 1,348 patient organizations, foundations, and registries that help individuals and families affected by rare diseases. Each entry includes a brief description of the mission and services of the organization, with phone and fax numbers, address, Web site, and e-mail address.

A keyword index makes it possible to search using the organization's name, the disease name, or the disease category. The Resource Guide may be purchased online or by calling NORD. The cost is $50 plus $7 for shipping and handling with the United States, $12 for shipping to Canada, and $20 for shipping to all other locations.

Questions about the NORD Resource Guide may be addressed to orphan@rarediseases.org.