The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Honorees

NORD Tribute Banquet Past Honorees

2002

  • Linda Suydam, DPA, Senior Associate Commissioner, FDA
  • U.S. Representative Mark Foley (R-FL)
  • U.S. Representative John M. Shimkus (R-IL)
  • U.S. Representative Henry Waxman (D-CA)
  • Actelion Pharmaceuticals US, Inc.
  • AstraZeneca
  • The Medtronic Foundation
  • ILEX Oncology, Inc.
  • Millennium Pharmaceuticals, Inc.
  • Novartis Pharmaceuticals

2001

  • U.S.Congressman Senator David R. Obey
  • Dr. Robert J. Temple, FDA Director Office of Medical Policy
  • Dr. Roscoe O. Brady, NIH Chief of Developmental and Metabolic Neurology
  • Kay Holcombe, Executive Vice President of Policy Directions
  • Cell Therapeutics, Inc.
  • InterMune
  • Orphan Medical, Inc.
  • General Cologne Re Corporation
  • Transkaryotic Therapies, Inc.

2000

  • U.S. Representative John D. Dingell
  • U.S. Representative Charles Norwood
  • Christopher C. Jennings, Assistant to the President for Health Policy Development
  • Frank Sasinowski, Hyman, Phelps & McNamara P.C.
  • Nancy Harris, Chairperson NORD Board of Directors
  • Elan Pharmaceuticals
  • INO Therapeutics, Inc.
  • Orphan Pharmaceuticals U.S.A., Inc.

1999

  • U.S. Senator Dianne Feinstein
  • Jane E. Henney, M.D., Commissioner, Food and Drug Administration
  • Agnes Varis, President, Agvar Chemicals, Inc.
  • Curt Engelhorn, President, European Foundation for the Advancement of Medicine and the Engelhorn Foundation for Rare Diseases
  • Celgene Corporation
  • Centocor, Inc.
  • Cephalon, Inc.

1998

  • Larry King, CNN
  • U.S. Congresswoman Senator Louise M. Slaughter
  • U.S. Congressman Robert Matsui
  • Stephen C. Groft, Pharm.D, Director, NIH Office of Rare Diseases
  • Lars-Uno Larsson, President and CEO, Swedish Orphan, AB
  • Genetics Institute, Inc.
  • PathoGenesis Corporation

1997

  • U.S. Senator Richard L. Durbin
  • U.S. Congressman Christopher Shays
  • William V. Corr, Chief of Staff, U.S. Department of Health and Human Services
  • MedImmune
  • Rhone-Poulenc Rorer
  • Ucyclyd Pharma

1996

  • U.S. Senator James M. Jeffords
  • W. French Anderson, M.D., Gene Therapy Pioneer
  • Marlene Haffner, M.D., M.P.H., Director, FDA Office of Orphan Products Development
  • Glaxo Wellcome, Inc.
  • Orphan Medical, Inc.

1995

  • Harold Varmus, M.D., Director, National Institutes of Health
  • Carol Hampton Rasco, Domestic Policy Advisor to the President
  • Jess G. Thoene, M.D., Professor of Pediatrics, University of Michigan
  • Past Chairman of the Board of NORD
  • Ken Larsen, President, Copley Pharmaceutical, Inc.
  • Mylan Pharmaceuticals, Inc.
  • Genetic Therapy, Inc.

1994

  • Philip R. Lee, M.D., Assistant Secretary of Health, Department of Health & Human Services
  • Francis S. Collins, M.D., Ph.D., Director, National Center for Human Genome Research, National Institutes of Health
  • Larry Thompson, Author, Correcting the Code: Inventing the Genetic Cure for the Human Body
  • Miles, Inc.
  • Roberts Pharmaceutical

1993

  • U.S. Senator Nancy L. Kassebaum
  • U.S. Congressman Henry A. Waxman
  • Jack Klugman, Actor
  • Bruce Fried, Senior Vice President & Deputy Council, The Wexler Group
  • Melvin Van Woert, M.D., Neurologist & Pharmacologist, Mt. Sinai School of Medicine
  • Bristol-Myers Squibb Company
  • Mission Pharmacal Company

1992

  • David Kessler, M.D., J.D., Commissioner, Food and Drug Administration
  • Allergan, Inc.
  • Teva/Lemmon/Gate Pharmaceuticals
  • Sigma-Tau Pharmaceuticals, Inc.

1991

  • U.S. Senator Mark O. Hatfield
  • Theodore Cooper, M.D., Chairman of the Board and Chief Executive Officer, The Upjohn Company
  • Marion Finkel, M.D., Vice President, Sandoz Pharmaceuticals
  • Enzon, Inc.
  • Schering-Plough Company

1990

  • U.S. Senator Tom Harkin
  • U.S. Congressman Silvio Conte
  • Jacob Schein, Chairman of the Board Schien Laboratories
  • James B. Wyngaarden, M.D.
  • Burroughs Wellcome Company
  • Somerset Pharmaceuticals, Inc.

1989

  • U.S. Congressman Doug Walgreen
  • American Airlines
  • Warner-Lambert Company
  • Kendall-McGaw Laboratories

1988

  • U.S. Senator Lowell P. Weicker, Jr.
  • Frank Young, M.D., Commissioner, Food and Drug Administration
  • Alice Fordyce, Executive Vice President, Albert and Mary Lasker Foundation
  • Merck & Company
  • Lyphomed, Inc.
  • Sandoz Pharmaceuticals

1987

  • U.S. Senator Orrin Hatch
  • U.S. Congressman Jamie L. Whitten
  • Bristol-Myers Squibb Company
  • Hoffman-LaRoche
  • Revco Drug Stores

1986

  • U.S. Senator Nancy L. Kassebaum
  • U.S. Senator Howard Metzenbaum
  • U.S. Congressman Henry A. Waxman

Over 1200 Disease Reports
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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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named NORD one of America's top 100 charities. Make your donation and help 25 million Americans with rare disorders.

Tribute Banquet
NORD honors members of Congress, scientists, and pharmaceutical firms for advances in rare-disease therapies at its annual Tribute Banquet in Washington, DC.
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Last modified Tuesday, August 24, 2010