The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Events

2002 NORD Tribute Banquet Gallery
Click on each picture for a larger view.

Representative Mark Foley (D-FL)
with NORD President Abbey Meyers

Representative Mark Foley (R-FL)
with NORD President Abbey Meyers

Linda A. Suydam, DPA (left), Senior Associate Commissioner, FDA 
Marlene Haffner, MD, Director, FDA Office of Orphan Products Development 
Frank Sasinowski, Hyman, Phelps & McNamara and NORD Board of Directors

Linda A. Suydam, DPA (left), Senior Associate Commissioner, FDA
Marlene Haffner, MD, Director, FDA Office of Orphan Products Development
Frank Sasinowski, Hyman, Phelps & McNamara and NORD Board of Directors

Michael Astrue, General Counsel, Transkaryotic Therapies, Inc., presenting

Michael Astrue, General Counsel, Transkaryotic Therapies, Inc., presenting "check" representing TKT's support for second year of NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships to Abbey Meyers, as Dr. Brady looks on

Karen Ball, CEO & Founder, Sturge-Weber Foundation and NORD Board of Directors 
Abbey Meyers 
Dr. Daniel Vasella, CEO, Novartis Pharmaceuticals

Karen Ball, CEO & Founder, Sturge-Weber Foundation and NORD Board of Directors
Abbey Meyers
Dr. Daniel Vasella, CEO, Novartis Pharmaceuticals

Kimberly Symonds, of Families of Spinal Muscular Atrophy and NORD Board of Directors 
Richard Rylander, Director of Field Operations, Actelion Pharmaceuticals US Inc. 
Estelle Benson, Executive Director, Guillain Barre Syndrome Foundation International and NORD Board of Directors

Kimberly Symonds, of Families of Spinal Muscular Atrophy and NORD Board of Directors
Richard Rylander, Director of Field Operations, Actelion Pharmaceuticals US Inc.
Estelle Benson, Executive Director, Guillain Barre Syndrome Foundation International and NORD Board of Directors

Richard Love of Ilex 
Desiree Lyon, Executive Director, American Porphyria Foundation and NORD Board of Directors 
Bill Hatfield, Millennium

Richard Love of Ilex
Desiree Lyon, Executive Director, American Porphyria Foundation and NORD Board of Directors
Bill Hatfield, Millennium

Abbey Meyers 
Maria Hardin, NORD Vice President of Patient Services 
David Brennan, President AstraZeneca

Abbey Meyers
Maria Hardin, NORD Vice President of Patient Services
David Brennan, President AstraZeneca

James Broatch, Chair Executive Director, Reflex Sympathetic Syndrome Association of America and Chair, NORD Board of Directors 
Jean Campbell, NORD Vice President of Development 
Marty Allen, Patient Link Coordinator, Medtronic Foundation

James Broatch, Chair Executive Director, Reflex Sympathetic Syndrome Association of America and Chair, NORD Board of Directors
Jean Campbell, NORD Vice President of Development
Marty Allen, Patient Link Coordinator, Medtronic Foundation

C. Kenneth Mehrling, Chief Operating Officer, Sigma-Tau Pharmaceuticals and Master of Ceremonies for the Banquet 
Sigma Tau staff members Justina Lambert and Lesli King

C. Kenneth Mehrling, Chief Operating Officer, Sigma-Tau Pharmaceuticals and Master of Ceremonies for the Banquet
Sigma Tau staff members Justina Lambert and Lesli King

Sami Said, Chairman of NORD's Medical Advisory Committee (center) 
Garrett Bergman, MD, of the Medical Advisory Committee and Mrs. Bergman

Sami Said, Chairman of NORD's Medical Advisory Committee (center)
Garrett Bergman, MD, of the Medical Advisory Committee and Mrs. Bergman

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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named NORD one of America's top 100 charities. Make your donation and help 25 million Americans with rare disorders.

Tribute Banquet
NORD honors members of Congress, scientists, and pharmaceutical firms for advances in rare-disease therapies at its annual Tribute Banquet in Washington, DC.
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Last modified Friday, March 21, 2008