Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

Newsroom

ONLINE PRESS KIT

About NORD
Quick Facts
FAQs

NORD IN THE NEWS

Celebrating 25 Years of the Orphan Drug Act
(Oncology Business Review, March 2008)

Log On For Support
(Washington Post, Feb 5 2008)

Could You Have a Rare Disease?
(Parade magazine, July 23, 2006)

RECENT NEWS RELEASES

If you would like to receive press releases by mail or email from NORD, write to webmaster@rarediseases.org.

NORD Gets Top Rating from Charity Navigator

Celebrating 25th Anniversary of Orphan Drug Act and NORD!

FDA and European Union Adopt Shared Form

2007 NORD Tribute Banquet Honorees

Read about 2007 Tribute Banquet

NORD/Roscoe Brady Lysosomal Storage Diseases Fellowship for 2006

LETTERS & POSITION PAPERS

Read letters and position papers on access to treatments and other issues.

UPCOMING EVENTS

PUBLICATIONS

CONTACTS:

General inquiries should be directed to:

Mary Dunkle
Vice President for Communications
mdunkle@rarediseases.org
Tel: (800) 999-NORD or (203) 744-0100
Cell: (203) 788-4596
PO Box 1968
Danbury, CT 06813-1968

Inquiries related to advocacy should be directed to:

Diane Dorman
Vice President for Public Policy
ddorman@rarediseases.org
Tel: (202) 496-1296
Cell: (202) 258-6457
1050 17th Street NW
Suite 600
Washington, DC 20036

Over 1200 Disease Reports
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ABOUT | CONTACT NORD

Help NORD improve the lives of people with rare diseases.

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

NORD's Washington Office

Read about NORD's advocacy on current issues, and learn how you can become involved. Click for details

Who We Are
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases. Read about NORD.

NORD Member Organizations

NORD Board of Directors

NORD Medical Advisory Committee

NORD Corporate Council

Four Stars For NORD
NORD has received a 4-Star Charity Rating (Exceptional) from Charity Navigator, an independent organization that provides information to charitable givers on more than 3,100 charities.

One of 100 Best Charities

Worth Magazine has chosen NORD as one of the 100 best charities in America.

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Last modified Tuesday, March 25, 2008