The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Events

NORD Tribute Banquet
Washington, DC: Capital Hilton Hotel
May 6, 2002
2002 Honorees

The NORD Corporate Leadership Awards

Actelion Pharmaceuticals US Inc.
...for the development of Tracleer„· for the treatment of pulmonary arterial hypertension (PAH).

Novartis Pharmaceuticals
...for the development of Gleevec„· for the treatment of chronic myeloid leukemia (CML) and gastrointestinal stromal tumors (GISTs)

Millennium and ILEX Oncology, Inc.
...for the development of CAMPATH„µ for the treatment of chronic lymphocytic leukemia (CLL)

The NORD Public Health Leadership Award

Linda A. Suydam, DPA
...Senior Associate Commissioner, U.S. Food and Drug Administration (FDA)

The NORD Humanitarian Award

The Medtronic Foundation
...for recognizing the needs of the patient community and working with voluntary health agencies to develop programs that improve the lives of people with rare disorders

The NORD Patient Access Award

AstraZeneca
...for the development of an innovative and compassionate Early Access Program for Iressa„· simultaneous with active enrollment of patients for controlled clinical trials

The NORD National Health Leadership Award

Representative John M. Shimkus (R-IL) and Henry Waxman (D-CA) for their sponsorship of the Rare Diseases Act of 2002.

Representative Mark Foley (R-FL) and Henry Waxman (D-CA) for their sponsorship of the Rare Diseases Orphan Product Development Act.

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ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Worth Magazine
named NORD one of America's top 100 charities.Worth Magazine
named NORD one of America's top 100 charities. Make your donation and help 25 million Americans with rare disorders.

Tribute Banquet
NORD honors members of Congress, scientists, and pharmaceutical firms for advances in rare-disease therapies at its annual Tribute Banquet in Washington, DC.
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Last modified Friday, March 21, 2008