Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

NORD Medical Advisory Committee

Sami I. Said, M.D. (Chair)
State University of New York
Stony Brook Health Science Center
Frederick Askari, M.D., Ph.D.
The University of Michigan Medical Center
Garrett E. Bergman, M.D.
CSL Behring
Hematololgy
Roscoe O. Brady, M.D.
National Institutes of Health
Robert Campbell, Jr., M.D.
Children's Hosptial of Philadelphia,
Division of Orthopedics
Pamela F. Gallin, MD, FACS
Columbia-Presbyterian Medical Center, New York City
James F. Leckman, M.D.
Yale University School of Medicine
Mary Jean Sawey, Ph.D.
Alliance for Scientific Affairs & Publications
Mendel Tuchman M.D.
Children's National Medical Center
Susan Winter, M.D.
Valley Children's Hospital, Madera, California
Doris T. Zallen, PhD
Virginia Tech University

Over 1200 Disease Reports
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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Last modified Wednesday, January 20, 2010