Jack Johnson, Fabry Support & Information Group; Barbara Wedehase, National MPS Society; Sara Collins, Genzyme Corporation |
Carolyn Asbury, Chair, NORD Board of Directors; Tim Turnham, United Cerebral Palsy (UCP) |
Frank Sasinowski and Carolyn Asbury, NORD Board; Abbey Meyers, NORD President; John Jenkins, MD, U.S. Food and Drug Administration |
Ted Roumel, PhRMA; Scott Whitman, BIO; Jayne Gershkowitz, National Tay-Sachs & Allied Diseases Association and NORD Board; Megan Moore, Urban Fellow, NORD; Kathleen Jaeger, GPhA |
Marlene Haffner, MD, and John J. McCormick, MD, of the FDA Office of Orphan Products Development
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David Hawkins, Jr., and Megan Moore, National Urban Fellow, NORD Washington Office |
Frank Sasinowski, NORD Board; Judit Unger, Tourette Syndrome Association and NORD Board; Emil Kakkis, MD, PhD, BioMarin; Nancy Harris, NORD Board
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Roscoe Brady, MD, National Institutes of Health, and Mrs. Brady
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Maria Hardin, NORD; Sol Barer, PhD, Celgene Corp; Josephine Grima, PhD, National Marfan Foundation and NORD Board |
Ronald Gunn, Insmed; and Ross Clark, Tercica
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Karen Ball, Sturge Weber Foundation and NORD Board; David Epstein, Novartis Oncology; Ed Boyer, Mercy Medical Airlift and NORD Board
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John J. McCormick, MD; Ronald Gunn; John Jenkins, MD; Sol Barer, PhD; Abbey Meyers; David Epstein; Ross Clark; Ted Roumel; Emil Kakkis, MD, PhD
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Dan Casserly, Debbie Friere, and Jim Elkin, of Novartis
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NORD staff
Front Row (L to R): Mary Dunkle, Donna Bolton, Abbey Meyers, Maria Hardin, Jean Campbell
Back Row (L to R): Michele Counihan, Jane Keane, Susan Olivo, Erin Olivo, Jeanette Nicosia, Diane Dorman
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Scott Whitman, BIO; Jean Campbell, NORD; Kathleen Jaeger, GPhA; Ted Roumel, PhRMA |
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
