Disease Information from NORD, National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

2005 NORD Tribute Banquet Images

Josep Torrent-Farnell, MD, PhD, PharmD, Chairperson of the European Union's Committee on Orphan Medicinal Products (COMP)
Michael O'Rourke of Bausch and Lomb
Nancy Holmes, Synthes Spine Corporation; Robert Campbell, Jr., MD; Jayne Gershkowitz, NORD Board of Directors

William Schultz, FDA; Elizabeth Dickinson, FDA; Karen Ball, NORD Board of Directors
Senator Jeff Bingaman (D-NM); Diane Dorman, NORD Vice President for Public Policy

Yann Le Cam, EURORDIS; Abbey Meyers, NORD; Marlene Haffner, MD, FDA; Professor Torrent-Farnell, COMP

Approximately 350 people attended the banquet
Yan LeCam, EURORDIS; Kimberly Symonds, NORD Board of Directors

Jim Broatch and Estelle Benson, NORD Board of Directors; Patrick Mahaffey, Pharmion Corporation

Janet Woodcock, MD, FDA; with Fran Sasinowski and Kurt Karst, Hyman, Phelps, and McNamara
Michael Werner, BIO
Professor Torrent-Farnell, COMP; Marlene Haffner, FDA

Last modified Wednesday, April 30, 2008